Tag Archives: fibro

Sometimes Small Moments Make the Best Memories

Callie did something so adorable and Queen Callie-like yesterday, it deserves its own post.

As many of you know, I have fibromyalgia, and it is severe enough to keep me home just working as a writer. One of the benefits of working from home and choosing my assignments/frequency of blog posts is that I regularly am able to nap. Napping is imperative most days if I want to function past 3pm.

So the dogs are used to our nap routine. I won’t go into the why of it, but when they come upstairs and lay down on either side of me, they get treats. At naptime, Callie lays on my right and Charlie on my left… until he gets down to see if he can find trouble.

Yesterday, Jess was off of work again and came upstairs too, shortly after I gave out the treats. She lay down on the left side – her side.

Callie suddenly gave me a dirty look and got down from the bed. I asked her if she needed to go out, but no. So I laid down a fleece blanket as a potential dog bed and offered it to her, that got a “thank you, but no.” So I opened the bedroom door to let her go downstairs to the couch if she wanted and climbed back in bed.

She immediately followed me back up, racing up her stairs to get in between Jess and me. I looked at her and started to laugh. She was still down at the bottom of the bed and had lain down but was alternating between looking pleadingly at me and shooting daggers at Jess.

Apparently, Jess is no longer allowed to come upstairs for naptime. Or if she does, she better not try to cuddle with me.

Callie, to whom we cater in every way, was not happy until we pulled her up closer to us and started petting her, telling her how much we loved her. And woah, we do, with all our hearts.

Spoiled Cavalier.

Round and round and round we go!

I can’t remember if I have said anything about it on here but, I have fibromyalgia (along with chronic pain and chronic fatigue – aren’t those part of fibro?) I was diagnosed when I was 29, 3 years ago, but I likely had it for a couple of years before.

What does this have to do with Callie or Charlie, you might be asking yourself. Nothing and everything. 

Fibromyalgia is not really understood yet by doctors or the public, heck, it’s not really understood by the patient who is experiencing it; it’s what’s often called an “invisible illness.” See the great spoon (energy) theory. Technically that was developed by a woman with Lupus, but she has spread it intending to be for all invisible illnesses.

Fibro affects those who suffer from it differently. It’s a nerve disorder of sorts. Some people get numb or tingling or sharp sensations in their faces, some get brutal muscle pain that spreads to their joints. I often suffer from “fibro fog” in which I struggle to think super clearly or say what I am thinking. The words are there, the images are there, but I can’t say them.

And then there is the worst, the flares. Sometimes when it flares up it’s just a bad neck/back/arms for me, but between the moving and all the activity this past month, my body shut down. I have spent the last three days in bed, getting up for food or to let the dogs out to go to the bathroom. I’m recovering, but that’s one of the things fibro does, it will slam you to the ground like a big wave if you don’t plan for rest times.

The dogs have been great, mostly happy to lie in the bedroom with me, especially now that they like to wrestle, but Charlie, as a 5-month-old puppy will do, is starting to go a little crazy. Yesterday, he purposefully antagonized our next door neighbor’s grumpy little Chihuahua TWICE, just so he could outrun her and fly back (I don’t even know how he got away from me the second time.) Thank goodness she’s a friend of ours!

I rescued this breed purposefully, not only out of my love for Cavaliers but because they can also either go or be mellow. I also knew that taking Charlie on meant a few years of craziness before the easy, mellow part – although he’s surprisingly good about that!

I feel like a failure when I hit this cycle again where my flares are so bad they prevent me from doing stuff with my dogs.

Charlie needs a regular training schedule. I can’t promise that. Callie needs to go on daily walks to stay a healthy weight and Charlie too, for weight as he grows, for exercise, and for energy. I can’t promise that either. I was able to when we got them, I was so good with Callie all winter and with Charlie this spring and early summer. And now… guilt

But then, right before we had to move, so many other things suddenly happened – mostly good, but energy-sucking none the less, and I’m back on the old carousel ride. 

 

Fibro, how I hate you.

 

 

 

 

And how grateful I am to have such a wonderful family who loves and supports me, and my fabulous dogs who may get cheated out of some things but are certainly spoiled in other respects! I just hope it’s good enough.

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